Emmy is off bypass! Her heart is beating on its own!!!!!
Yesterday, it was determined that a surgical team would try and take her off bypass because she was bleeding. We were incredibly nervous. Last time she came off bypass, we ended up with 2 cardiac arrests and a very, very tenuous situation. One day, I’ll write about exactly what happened, but I can’t even go back there in my mind right now. I’ll put it this way — we almost lost her.
This time, she tolerated the move off bypass very nicely, and we had a beautiful night next to Emmy with her heart beating away at nice steady pace. Today, she is still sedated, and she is on a respirator to help her lungs. Overall, she continues to have steady progress in the right direction!
I’ve experienced many amazing things over the past week and, again, I’ll write about those at a later date. I’m still in a hospital room with her, and it’s difficult for me to really reflect on anything until we are home safe and sound.
But I’ll tell you a story from yesterday…
It was Charlotte’s 4th birthday, and her wish was to see her sister. Yikes. We hadn’t planned on having her see Emmy from the beginning of this journey because we were only supposed to spend a couple days here. But with the complications, Emmy’s stay got longer and longer. And Charlotte got more and more curious.
“Why can’t I see her?”
“Just send me a picture.”
“Put her on FaceTime.”
“I know she’s sleeping. I still want to see her.”
My gut told me that it was time she saw Emmy. We seemed to be doing more harm with all the secrets and avoidance. Charlotte has had a tough time the past couple days. She’s a girl who loves routine, so all the craziness has really had an affect on her. We tried to shelter her from it, but kids FEEL things. Probably better than adults.
Even though my gut told me to bring her in to see Emmy, my mind flashed back to a few days ago when my sister came to visit. Upon seeing Emmy, my sister fainted! I must tell you — it is difficult to see Emmy like this. It isn’t glamorous by any means. But here I was thinking, if my 28 year old sister fainted, did I really want to bring a 4 year old in to this situation?
Turns out that there’s a Child Life team at the hospital, and they’re excellent. They prepare kids for seeing their siblings in this state.
So for Charlotte’s birthday wish, I brought her to the hospital to see her sister. The wonderful woman from Child Life helped ease Charlotte into it. Before we went in, she gently asked questions about how Charlotte was feeling and described the contraptions that we would see in the room.
When we entered Emmy’s room, Charlotte’s eyes immediately went past all of the machines and landed straight on her sister’s sweet face. She was quiet, taking it all in.
After a few minutes, the Child Life specialist asked, “I see you’re looking at something, Charlotte. Do you want to tell me what you’re looking at?”
Charlotte nodded slowly and then said, “My baby sister Emmy.”
She barely noticed all the machines. She only saw her sister. It was beautiful.
We went into the waiting room to give Charlotte her birthday presents, and throughout the afternoon she kept asking to return to Emmy’s room — to see her baby sister.