Hope and Faith


I am so touched by how many people read and forwarded my last post about Emmy’s complications after heart surgery. I felt support from everywhere. In my scariest and darkest time, I was lifted up by others. I’ve been writing about the power of support for a few months now, and I had no idea how much that would become true after Emmy’s surgery.

I’ve felt that support so strongly as I’ve sat next to Emmy in this hospital room. She’s sedated and on bypass, but I talk to her. I encourage her and cheer her on. I tell her about the people who are rooting for her. I am POSITIVE that she feels it too. Tomorrow they will test her heart a little more to see if it can withstand a gentle move off bypass, and I know I will continue to feel the faith all around.

I started this blog a few months ago and have been getting anywhere from 5 to about 50 visitors on an average day. The most I’ve ever gotten was about 108 visitors. I’m just happy to have 1 visitor!! I’m touched that people would come and check-in with my family, and writing is therapeutic for me.

My last post, in which I asked for support following Emmy’s complications, was passed around from person to person to person. People wanted to help and pray and think good thoughts and offer me hope and faith from across towns and states and countries. It felt like everyone had my back when I needed it most.

That night, I checked to see how many people visited my blog. Even seeing 1 visitor would’ve boosted me up and made me feel like someone was cheering us on.

The number amazed me.

1,079 visitors came to my blog that day!

And they came from many countries — Chile, Turkey, Malaysia, the UAE…

They came from everywhere.

That means that, all across the world, we want so desperately to connect with others–to be there for people in need. It brought tears to my eyes and love to my heart.

It brought love to Emmy’s heart too. I could FEEL it. Just when we needed you, you were right there. From my deepest place of gratitude, thank you.

With your help, I keep cheering her on. “GO EMMY GO!!!”

12 thoughts on “Hope and Faith

  1. Emmy has been in my family’s thoughts and prayers – I know she will continue to get stronger every day. She has so many people rooting for her!

  2. Emmy is so lucky to have such positive parents! I know she feels the positive vibes from you and everyone rooting for her everywhere! Xoxo

  3. so much love is coming to emmy, we humans are so wonderful sometimes it makes me remember the good in the world far outweighs the bad. it takes a little sweet baby like emmy to remind us of what is important. she is my first and last thought every day 🙂

  4. We are all with Emmy in that hospital room in spirit, thought and prayer! She is an amazing little girl with an amazing family who has touched the hearts of more people in 22 months than most of us can hope to touch in our lives. May God continue to bless her and everyone who loves her ❤

  5. So glad to see updates from you about Emmy … We are keeping her close in our thoughts and prayers so it is nice to see updates. Continued prayers, positive thoughts and good wishes … and a couple of ((hugs)) for all of you !

  6. You all are in my constant thoughts and prayers. Emmy is a strong, beautiful little girl and she has the most amazing family. Love to you all!

  7. Beautifully written and so I inspiring, Vanessa. I think back to bens hospitalization 26 years ago and what this type of support must mean. A hospital room can be the loneliest place in the world. It’s wonderful to know that Emmy’s room is filled to capacity with love and positive thoughts.

  8. Bella Emmy, you are soooooooooo strong and we know you will be running, jumping and laughing soon.
    We love you,
    Jessy, Matt, Arturo, Marisol, (Kizzy dog) and (Roger bird)

  9. hi we just found out.our son.has WS and it was like i was hit by a bus. so many questions answered but so much fear consumed me. your story brought tears to my eyes and your family inspire me. we r still looking for answers and strategies to help our beautiful son…we just want to.focus on making life great for him..

    • Hi Nur,
      I’m so glad you reached out. I know that the diagnosis sounds very, very scary. I was in your shoes. I had no idea what was in store for Emmy when we heard the words “Williams syndrome.” I can tell you, though, that the reality of WS is nowhere near as scary as it sounds. In many ways, Emmy is a typical toddler doing all the typical toddler things. Medical issues can arise, and those will be unnerving. But you find that you get through them. And, after a while, you find that you can get through anything. If you have any questions at all, please do not hesitate to email me at: williamssyndromesmile@gmail.com
      Best of luck to you and your wonderful son!

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